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[…] in our efforts to raise even more funds this year to support those affected by FSHD and to fund important research to take one step closer towards finding a cure! […]
[…] brand-new Orange Slice Selfies video to find out how you can join in celebrating World FSHD Day coming up on June 20th! With the help of great supporters, video editors […]
Fox 25 Boston recently shared the Pappas family’s journey with FSHD and youngest member, Lexi Pappas’ touching short documentary. Lexi Pappas of Natick, MA was diagnosed with the disease in […]
[…] the Light features the powerful story of high-school senior Sarah Geissler, who is living with FSHD, and her experience with FSH muscular dystrophy, a rare genetic muscle-weakening disease that affects […]
[…] the form online on their website. Otherwise, you may mail the completed form to the FSHD Society, and we’ll handle the rest: FSHD Society ATTN: Dermot Whittaker 450 Bedford Street […]
