Big news! We’ve teamed up with the online fundraising platform Omaze to give you the chance to meet Dan Levy, of Schitt’s Creek. Dan is the co-creator and star of the hit comedy series, a 2019 Prime Time Emmy award multi-nominee including Outstanding Comedy Series. Donate through Omaze for chances to win a VIP trip to… Read More »
Meet Dan Levy of Schitt’s Creek!
Walk Pioneers Lead the Way!
This September and early October, the FSH Society will host its new signature fundraising event, the Walk & Roll to Cure FSHD in five communities from coast to coast. These Volunteer Leaders are paving the way for their communities to raise funds and increase awareness! 5 Brave Walk Pioneers have agreed to attend monthly training sessions, beta-test… Read More »
Blazing a Trail to the Future
You inspire me! You have faithfully supported, worked, and engaged your network and loved ones to join our quest for treatments and a cure for FSHD. I want to acknowledge our deep appreciation for your past support and generosity. Many of the advancements of this year would not have been possible without you. It has… Read More »
Not Your Mother’s Yarn
FSH member Kathy Senecal will be fundraising for the FSH Society in the coming months at four different craft fairs through her business, Not Your Mother’s Yarn. 100% of the net proceeds will be donated to the FSH Society. Kathy offers a large selection of hand-spun yarns, as well as hats, snoods, fingerless gloves, and… Read More »
Double Your Donation… Easily and Free!
Corporate Matching Gifts: Does Your Company Match Your Donation? Did you know many companies offer a matching gift program to encourage philanthropy among their employees? And that some companies will even match to spouses, retirees, and board members? By simply completing the matching gift form from your employer, you may be able to double, or even… Read More »