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Together, we move toward a cure Ending FSHD will take all of us and the Walk & Roll to Cure FSHD makes it easy for everyone to team up – […]
The recent news that Lululemon founder Chip Wilson is committing $100 million USD to targeted FSHD research over the next six years has been called ‘game-changing’,generating tremendous excitement and hope […]
[…] paid out by the United States National Institutes of Health (NIH) was awarded to study FSHD? Maybe you are as shocked as I was when I first heard this while […]
Evidence-based, if incomplete, new guideline is a major step forward. All too often, FSHD patients encounter doctors whose knowledge of the disease seems to be gleaned from dusty textbooks. A […]
Last week, Mark Stone, the FSHD Society president and CEO, gave his fourth-quarter progress report on the Therapeutic Accelerator for FSHD treatments. His presentation was given via webinar to leadership […]
