Our look is new. Our purpose is the same. Learn more about our brand evolution.
During the 2014 biennial FSHD patient conference in Boston, the FSH Society arranged for a group to visit the MIT Media Laboratory, where Professor Hugh Herr leads a visionary team […]
[…] it does not have me by DAVID YOUNGER, PhD Austin, Texas I was diagnosed with FSHD when I was about four, at the same time my mother and grandmother were […]
[…] In this webinar, Mark shares his experiences over the past six months learning about the FSHD community, and lays out his vision for how the FSH Society will empower families […]
[…] better. Share a video or photo of your rare talent via social media using # FSHDRareTalent Tag three friends asking them to share their rare talents via social. In lieu […]
[…] and sports sign on to help raise awareness. University of Massachusetts Medical School opens new FSHD research center and clinic. Photos and stories from the Celebrity Walk ‘n’ Roll, New […]
