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by Nikki Young, Clarksburg, Maryland Like many others with FSHD, I have suffered from dry eyes. Weakness in the muscles around my eyes prevented me from closing my eyelids fully, […]
[…] FSH Society. You are the very soul of persistence. Figuratively, each of you living with FSHD takes “11 more steps” every day by: rising hours earlier than others just to […]
The University of Massachusetts Medical School’s Wellstone Center for FSHD Research is a leading team of scientists dedicated to understanding FSH muscular dystrophy and developing treatments. The center kindly hosted […]
[…] Hughes Goodman’s (DHG) South region. I also happen to live with facioscapulohumeral muscular dystrophy ( FSHD). You may have seen me riding my red scooter (aka “Big Red”) around downtown […]
[…] and mother of two who lives in the suburbs of Philadelphia. Taylor was diagnosed with FSHD in 2014 when she was eight weeks pregnant with her second daughter. She has […]
