Our look is new. Our purpose is the same. Learn more about our brand evolution.
[…] dystrophy. Her research seeks to improve our understanding of the patterns of muscle involvement in FSHD and to develop non-invasive imaging biomarkers that can be used to study FSHD in […]
[…] I went on for advanced training as a yoga therapist, and after being diagnosed with FSHD, I began working with individuals with specific physical needs. As traditional poses became difficult […]
During the 2014 biennial FSHD patient conference in Boston, the FSH Society arranged for a group to visit the MIT Media Laboratory, where Professor Hugh Herr leads a visionary team […]
[…] it does not have me by DAVID YOUNGER, PhD Austin, Texas I was diagnosed with FSHD when I was about four, at the same time my mother and grandmother were […]
[…] In this webinar, Mark shares his experiences over the past six months learning about the FSHD community, and lays out his vision for how the FSH Society will empower families […]
