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[…] person or participating virtually, every step you take brings us closer to a cure for FSHD. From now through event day, we’re celebrating the power of individual action—because every fundraiser, […]
FSHD brings with it several important health issues, We’re here to help you learn and understand more. In addition to the information below, follow our blog for regular updates […]
On May 9th, 2025, the FSHD Society will host an Adjunct Scientific Workshop. This meeting will be held virtually. It will be in a webinar format, is open to the […]
Are you ready to advocate for the FSHD community? We need your voice to help influence hearts and minds! By working together, we can make sure that our elected officials, […]
[…] clip, click here. After being diagnosed at 19 years old, Brchan has battled the effects of FSHD most of her life. “It was very hopeless,” said Brchan. “They knew very little about […]
