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[…] closet for several years. He was happy to have them. When I was diagnosed with FSHD in 1994, I was terrified by the thought that I might have to use […]
[…] alone. Currently there are 12 chapters in development and five Walk & Roll to Cure FSHD events underway. Volunteer leaders from across the country have stepped up to make a […]
[…] a cure, as his son Jimmy and his wife Barbara, both now deceased, suffered from FSHD. “I am committed to our goal of having a disease-modifying drug to our families […]
[…] humor, and a wealth of helpful tips for overcoming the impediments and inconveniences imposed by FSHD. A constant refrain of the group has been, “This is so great! We should […]
[…] their products deserve support and recognition by our community. We would love to compile a curated list of best designs for the FSHD community. Post your favorites in the comments section!
