Our look is new. Our purpose is the same. Learn more about our brand evolution.
[…] Facebook and 4 million Twitter followers, so her ability to get the word out about FSHD is huge! We are so grateful to her for supporting us! Read more about […]
[…] help find a cure & provide support for those affected by FSH muscular dystrophy # FSHD: https://bit.ly/GivingTuesdayFSHD (or use the link for your personal Facebook fundraiser). As this is an event largely […]
[…] FSH Society’s Celebrity Walk ‘n’ Roll, which was held in Irvine, California, from 2011 to 2014. Join us to hear his FSHD story and learn about his career and current projects.
[…] family, and the bike rides were becoming shorter. Having been diagnosed at age 12 with FSHD, I felt lucky that I had been able to ride a bike as long […]
by June Kinoshita, FSHD Society At a recent Feeling Fit Zoom gathering, Cheryl Clulow, who had logged in from her home in Cape Town, South Africa, mentioned that she has […]
