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[…] years, this is your story. Please share this with others to help them understand what FSHD is, the great progress that has been made, and how their support can lead […]
[…] higher. Would I have followed his instructions if I had known that my problem was FSHD? Sadly, the answer would have been no. I would have dismissed the diagnosis as […]
[…] to find the right adaptive equipment we need to help us navigate the progression of FSHD. My search to stay mobile for as long as possible has led me to […]
[…] style Kung Fu, Taijiquan and multiple Qigong styles and practices. He organized and launched the FSHD Society South Carolina Chapter and served as Chapter Director. Frank designed this session to […]
[…] Medical School scientist Peter Jones gave a heartfelt talk about how a graduate student with FSHD inspired him to go into the field. After dinner, everyone flocked back to TD […]
