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[…] and receive a $5,000 donation from sponsor Munzee. Congratulations Skylar!! You are an inspiring young woman, a great advocate for the FSHD and disabled communities. Read more about Skylar’s mission here.
[…] Congress on FY2016 spending urged lawmakers to call for NIH to increase annual spending on FSHD research from the current $7 million to $21 million. The Act, which requires the […]
[…] $250. All proceeds will go to the FSH Society. Steven Blier, who was diagnosed with FSHD as a child, is a renowned pianist and Master Coach to the San Francisco […]
[…] the country come together to raise money to help find treatments and a cure for FSHD. These amazing volunteers are making a real difference—and you can, too! Whether you host […]
[…] reaction. This was the day I was diagnosed with FSH muscular dystrophy. Facioscapulohumeral dystrophy ( FSHD) is a progressive type of muscular dystrophy that atrophies the skeletal muscles of the […]
