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Connect with Community You are not alone on your FSHD journey. The Society offers diverse opportunities to connect with others who understand. Find support, share experiences, learn, and build lasting […]
[…] business organization and transactions from his office in Cape Cod, Massachusetts. Bob was diagnosed with FSHD at the age of 14 and had been active with the FSH Society since […]
Ways to Make a Difference The fight against FSHD needs you. Explore the many ways you can help and be part of the movement to change lives.
[…] my home, regardless that it’s now incredibly hard to stand and walk. Yes I have FSHD (facioscapulohumeral dystrophy), a type of muscular dystrophy that slowly takes away my mobility. I […]
[…] will change my life forever,” he says. His dream is to show younger kids with FSHD that their love of sport doesn’t have to end with their diagnosis. This is […]
