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The FSH Society has awarded a grant for a second year of support for the FSHD Clinical Trials Research Network (CTRN), through the coordinating center based at the University of […]
The FSH Society is excited to celebrate the Second Annual World FSHD Day and join the global effort to raise awareness to FSHD this June 20th. To build upon last […]
[…] past few years, there has been an increase in the number of pharmaceutical companies developing FSHD therapeutics. These strategies primarily focus on blocking DUX4, the toxic element that causes FSHD. […]
[…] Drug Administration (FDA) cleared the company’s investigational new drug (IND) applications of AOC 1020 for FSHD as well as of a second drug, AOC 1044, for the treatment of Duchenne […]
[…] North Carolina Wilmington. Using validated survey instruments, she created a questionnaire which was emailed to FSHD Society members. Some 690 people completed the survey. Statistical analysis of the data found […]
