fshd - FSHD Society

FDA orphan drug designation for Genea Biocells’ FSHD drug candidate

Posted on May 31st, 20185/31/18

[…] Administration (FDA) for its therapeutic candidate, GBC0905, for the treatment of facioscapulohumeral muscular dystrophy ( FSHD). Scientists from Genea Biocells will be attending the FSH Society’s International Research Conference and […]

Filed under: FSHD Research

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World FSHD T-shirts are here!

Posted on May 22nd, 20175/22/17

World FSHD Day is right around the corner and we know you want to be ready to raise awareness. The Society’s World FSHD Day t-shirts are here in the official […]

Filed under: Fundraising & Events

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Ask the Physical Therapist: Car Accidents and FSHD

Posted on February 13th, 20172/13/17

[…] & wellness and is an instructor in Doctor of Physical Therapy program at USC. I have FSHD and have been in two vehicle accidents—-one in 2001 and one in 2014. Both […]

Filed under: Living with FSHD, PT and Exercise

Tags: Ask the PT, FSHD, Julie Hershberg, whiplash

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FSHD Representation in Film Fest Favorite ‘Good Bad Things’

Posted on March 1st, 20243/1/24

Good Bad Things breaks barriers and earns accolades by Erin Saxon, FSHD Society In August, we shared exciting news about Good Bad Things, a film that promised to challenge perceptions […]

Filed under: General, Living with FSHD

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Acceleron to host webcast on FSHD clinical trial

Posted on October 13th, 201610/13/16

[…] diseases, today announced that it will host an educational webinar on facioscapulohumeral muscular dystrophy ( FSHD) and the Company’s Phase 2 clinical trial of ACE-083 in FSHD patients. The webinar […]