Our look is new. Our purpose is the same. Learn more about our brand evolution.
[…] and Leigh Reynolds, FSH Society Our first nationally branded event, the Walk & Roll to Cure FSHD, will take place in September and October 2018. This new, signature fundraising event is […]
The preliminary agenda and registration are now available for our first Mid-Atlantic FSHD Family Day Conference. It will be held in Baltimore, MD. Co-organized with Kathryn Wagner, MD PhD, and […]
[…] Presentations and breakout sessions slides can be downloaded by clicking on the highlighted titles* below: FSHD Science 101. Alexandra Belayew, PhDÂ (VIDEO) Genetics and genetic testing. Silvere van der Maarel, PhD […]
[…] has granted Orphan Drug Designation to EPI-321 for the treatment of facioscapulohumeral muscular dystrophy ( FSHD), the most common form of muscular dystrophy in adults. EPI-321 is an investigational therapy […]
[…] novel therapies targeting muscle and cardiac tissue. Among the disease KateTx plans to tackle are FSHD and myotonic dystrophy Type 1. Efforts to deliver gene therapies into cells typically rely […]
