Our look is new. Our purpose is the same. Learn more about our brand evolution.
Our community’s premier networking event for immersive learning and community building Our biennial FSHD Connect Conference is an amazing opportunity to meet hundreds of patients and families, as our leading […]
[…] Kinoshita, executive director. Neil Solomon MD, and Howard Chabner JD FSH Society Board of Directors. FSHD 101: Genetics, Diagnosis, and Care Standards. John Day MD PhD, Director, Neuromuscular Division and […]
Thanks to our friend and fellow FSHD advocate in China, Ning Baisheng, our “About FSHD” brochure has been translated and adapted for readers in China. Baisheng says patients in China […]
 And here they are, our champions! Team FSHD Cycling at the Race Across America finish line in Annapolis last night! We couldn’t be more proud, and humbled, by this […]
The Kennedy Krieger Institute is recruiting volunteers with FSHD for a clinical research study. Volunteers will be asked to undergo muscle strength testing and non-invasive magnetic resonance imaging (MRI) and […]
