Our community’s premier networking event for immersive learning and community building
Our biennial FSHD Connect Conference is an amazing opportunity to meet hundreds of patients and families, as our leading thinkers share the latest in medical management of FSHD and exciting advances toward treatments. Breakout sessions will cover how to cope with practical and emotional transitions, caregiving, advances in assistive technologies, “accessibility hacks,” physical therapy and exercise, surgical strategies, breathing, swallowing, wellness, and more. You won’t want to miss the CureFSHD Banquet on the evening of June 9.
The conference will be held at the Flamingo Las Vegas hotel and resort. Las Vegas has inexpensive, non-stop flights from numerous cities, excellent accessible public transportation from the airport to the Strip, and large numbers of ADA-compliant hotel rooms.
Needs-based scholarships and discounted hotel rates available!