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[…] be easily recognized within a health information system. Assigning an individual ICD 10 codes for FSHD will: facilitate the surveillance of FSHD; will allow more accurate estimates of the condition’s […]
[…] the FSH Society made its initial grant award in 2016 to help establish the nationwide FSHD Clinical Trial Research Network (CTRN), we expected the network would be able to bring […]
[…] empower families, and to fund groundbreaking research to find treatments and a cure! Celebrate World FSHD Day (June 20th) and discover the incredible power of networking by starting your own […]
[…] a locally-acting “Myostatin+” muscle agent, for the treatment of patients with facioscapulohumeral muscular dystrophy ( FSHD). “This is an important milestone in the development of ACE-083—our lead program within our […]
[…] that I had muscular dystrophy. I strongly urge anyone who has a family history of FSHD to get genetically tested because although there is no cure today, this doesn’t meant […]
