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https://vimeo.com/228261860 Check out this amazing video of Team FSHD Cycling’s epic race this summer. Huge thank you to Emily Pollock for creating this priceless documentary. Warning: Have a box of […]
[…] liaison with patients and families. In 2011, Dr. Birnbaum lost her mother to complications related to FSHD. She is eager to promote the Society in its search for a cure and to offer […]
[…] has the power to drive change. By sharing your experience, you help bring visibility to FSHD, strengthen advocacy efforts, and connect with others who understand. Every journey is different, and […]
A health and research platform providing tools to better understand and manage your FSHD. Join BetterLife FSHD Today!
[…] Fragile X syndrome (FXS) and a form of muscular dystrophy called facioscapulohumeral muscular dystrophy ( FSHD). Each disease arises from a single gene mutation that creates an error in gene […]
