Search results for ‘fshd’

FSHD Family Day Conference in Los Angeles

Posted on October 1st, 201710/1/17

The FSH Society’s Los Angeles FSHD Family Conference will be held on October 21, 2018, at Santa Monica College’s Bundy Campus. Join patients, families, and top researchers and clinicians for […]

Filed under: FSHD Research, Fundraising & Events, Health and Medicine, Living with FSHD, PT and Exercise

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¡El folleto “About FSHD” ya está disponible en español!

Posted on August 14th, 20178/14/17

Estamos muy contentos de anunciar que About FSHD, nuestro folleto esencial para todos los pacientes, familias, proveedores de atención primaria y otros, ha sido traducido al español. Damos las gracias […]

Filed under: FSHD Society News

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Relive Team FSHD Cycling’s Race Across America!

Posted on August 8th, 20178/8/17

https://vimeo.com/228261860 Check out this amazing video of Team FSHD Cycling’s epic race this summer. Huge thank you to Emily Pollock for creating this priceless documentary. Warning: Have a box of […]

Filed under: FSHD Society News, Living with FSHD

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FSH Society Talk Radio on mindfulness in coping with FSHD

Posted on June 25th, 20176/25/17

[…] liaison with patients and families. In 2011, Dr. Birnbaum lost her mother to complications related to FSHD. She is eager to promote the Society in its search for a cure and to offer […]

Filed under: Living with FSHD, Media & PR, Mental Health

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Share Your FSHD Story

Posted on April 9th, 20254/9/25

[…] has the power to drive change. By sharing your experience, you help bring visibility to FSHD, strengthen advocacy efforts, and connect with others who understand. Every journey is different, and […]

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