BetterLife FSHD
A health and research platform providing tools to better understand and manage your FSHD. Â Join BetterLife FSHD Today!
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A health and research platform providing tools to better understand and manage your FSHD. Â Join BetterLife FSHD Today!
[…] Fragile X syndrome (FXS) and a form of muscular dystrophy called facioscapulohumeral muscular dystrophy ( FSHD). Each disease arises from a single gene mutation that creates an error in gene […]
Best practice guidelines on genetic diagnostics of FSHD are now available and published in the journal Neuromuscular Disorders! FSH Society sponsors workshop held June 9, 2010, in Leiden, The Netherlands. […]
FSH Society research fellows report in Cell that junk DNA may be responsible for FSHD and other examples of faulty gene regulation More
FSH Society Submits FY2014 Written Testimony U.S. House Appropriations Subcommittee on LHHSE for funding NIH and Research on FSHD at a level of $12 million annually More / Testimony in PDF