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Our look is new. Our purpose is the same. Learn more about our brand evolution.
We’ll help you find the resources you need, no matter where you are on your journey with FSHD. Connect Via Email Submit Your Question(s)
[…] this would be my year to compete in it. I used to always hide my FSHD, but something changed within me this year. I have opened up and I am […]
[…] disease. After thirty-two years, it was about time. “Are you willing to talk to me, FSHD? I know you are there.” “Yes.” “Can you tell me why you showed up […]
[…] data will be publicly presented for the first time earlier on June 24 at the FSHD Society’s International Research Congress. This webinar will be the first presentation of the data […]
[…] have progressed along the path to FDA approval. DUX4 is considered a key gene causing FSHD. The process begins with finding a “target,” or biological disease mechanism, that can be […]