Our look is new. Our purpose is the same. Learn more about our brand evolution.
Our new video explains the basic facts about facioscapulohumeral muscular dystrophy–the symptoms, how it affects those who have it, how it is inherited, and how many people are affected. Watch […]
This infographic from our FY2017 Donor Report illustrates how the FSH Society is involved at every stage of the treatment development process. We invest strategically at key stages along the […]
Thank you to Missy Cassidy for submitting the request to the Governor’s office! Next year, let’s go for proclamations in all 50 states!
Ellen Feldman, filmmaker, created this documentary about a woman she met who has FSH muscular dystrophy. “Katy Kat in the Hat is a story about a woman who defies all […]
