fshd - FSHD Society

Pro Golfer Morgan Hoffman’s FSHD diagnosis leads him to a higher calling

Posted on April 10th, 20184/10/18

Contributed by MORGAN HOFFMANN West Palm Beach, Florida In November 2016, I was diagnosed with muscular dystrophy, an incurable disease. The last few months have been the most trying of […]

Filed under: Living with FSHD

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Newly Diagnosed with FSHD?

Posted on July 19th, 20197/19/19

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From the Wayback Machine, 2010

Posted on February 21st, 20242/21/24

[…] a good Samaritan finds the treasure and returns it. That’s what happened recently when long-time FSHD Society member Don Burke was updating the Wikipedia page on Facioscapulohumeral muscular dystrophy and […]

Filed under: FSHD Research, General

FSH Society Hails Major Breakthrough in FSH Muscular Dystrophy

Posted on August 19th, 20108/19/10

[…] President and CEO of the FSH Society and a 48-year-old patient with facioscapulohumeral muscular dystrophy (FSHD), the most common form of muscular dystrophy, hailed new findings, published today in Science, […]

Filed under: FSHD Research, FSHD Society News

Tags: Research breakthroughs

FSH Society awards $690,894 in new research grants

Posted on February 14th, 20182/14/18

[…] that occur naturally in our cells to repress DUX4, the “toxic gene” thought to cause FSHD. A deeper dive into why FSHD muscle may have trouble regenerating. These are some […]