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Analysis of FSHD registry data overturns prior ideas about genetic and gender factors by Natalie Katz, MD, University of Rochester Natalie Katz, MD Facioscapulohumeral muscular dystrophy is a highly variable […]
[…] held in Boston on October 5-6, 2015, brought together over 100 investigators, including leaders in FSHD research and many industry sponsors, to discuss advances made over the past year. In […]
[…] granted Fast Track designation to losmapimod for the potential treatment of facioscapulohumeral muscular dystrophy ( FSHD). “There are no approved therapies to treat patients with FSHD, and losmapimod is currently […]
[…] British Columbia decided it would not provide national health insurance coverage for genetic testing of FSHD, it triggered this response from a constituent. She raises important arguments that could apply […]
[…] Palm Harbor, Florida The Mirzas I am an 86 year old white male, living with FSHD for the past 68 years. I wanted to share my life’s FSHD experiences with […]
