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[…] taking placebo. This contradicts data from more than five years of natural history studies of FSHD, which have never shown an improvement in RWS in untreated individuals. The Phase 2 […]
[…] Weight loss typically includes both fat and some muscle. How much muscle a person with FSHD might lose when taking one of these drugs isn’t known. The severity of your […]
[…] Wright, an NIH Wellstone Center researcher, who derived them from a muscle biopsy from an FSHD patient and healthy family members. That tissue donation was made possible by FSH Society […]
[…] quest to find knowledgeable clinicians − doctors, physical therapists, pulmonologists, and other specialists −who understand FSHD and can help manage their symptoms. It’s hard to fault the clinicians. There are […]
[…] MD PhD, University of Massachusetts Medical School Kyoko Yokomori, PhD To develop robust therapies for FSHD, we need a better understanding of the sequence of events occurring at the single-cell […]
