Our look is new. Our purpose is the same. Learn more about our brand evolution.
At the end of the day, if there were a drug that stopped FSHD in its tracks, would you want it, even if it did not restore what you have […]
[…] June 20, 2019, at age 32 after sustaining severe head trauma from a fall. The FSHD community mourns her tragic loss. She wrote this essay for us shortly before her […]
Daniel Perez Daniel Perez, president and CEO of the FSH Society, represented the FSHD community at last week’s meeting of the Muscular Dystrophy Coordinating Committee (MDCC). The day-long meeting was […]
[…] campaign, #CureFSHD! The purpose of the campaign is to spread awareness and educate people about FSHD. We will begin sharing impactful photographs of people with FSHD overlaid with little-known facts, warning […]
Your doctor can order a genetic test for FSHD. Before seeking a test, consult a genetic counselor to make sure you fully understand the process and have considered how you […]
