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[…] to move closer to our collective goal of better treatments and ultimately a cure for FSHD. As we close the book on 2017, we have much to celebrate. Together, we […]
[…] a number of compelling similarities to the human disease. Ever since the genetic mechanism of FSHD, centered on the abnormal expression of the DUX4 gene, was published in 2010, scientists […]
Meet the newest addition to the Anson Calder collection: The Cash Wallet in FSHD Orange! In recognition of FSH muscular dystrophy (FSHD), Anson Calder designed the Cash Wallet in the […]
When my mother, Carol, was diagnosed with facioscapulohumeral muscular dystrophy ( FSHD) in the late 1950s, she was told she had only five years to live. As appalling as we […]
[…] who we are, the impact we make together, and the future we’re building with the FSHD community. Why the Change? For individuals living with FSHD, every day is a fight […]
