Our look is new. Our purpose is the same. Learn more about our brand evolution.
[…] who we are, the impact we make together, and the future we’re building with the FSHD community. Why the Change? For individuals living with FSHD, every day is a fight […]
by Kim Shanley, FSHD Society At the FSHD Society, we know that every advance is made possible by the incredible support of people like you. One way you can join […]
[…] Cohort C of the Phase 1/2 FORTITUDE™ clinical trial. Below is Avidity’s letter to the FSHD community and their answers to some FAQs: October 30, 2024 We are very pleased […]
[…] of sitting around a table and talking to others about my struggle with facioscapulohumeral muscular dystrophy ( FSHD). In retrospect, my viewpoint was shortsighted and selfish. My first actual experience with support […]
by Amanda Hill, FSHD Society How do I find clinical trials that are recruiting participants? Our website is one of the best ways to find clinical trials that are recruiting. […]
