Our look is new. Our purpose is the same. Learn more about our brand evolution.
by Kim Shanley, FSHD Society At the FSHD Society, we know that every advance is made possible by the incredible support of people like you. One way you can join […]
[…] Cohort C of the Phase 1/2 FORTITUDE™ clinical trial. Below is Avidity’s letter to the FSHD community and their answers to some FAQs: October 30, 2024 We are very pleased […]
[…] of sitting around a table and talking to others about my struggle with facioscapulohumeral muscular dystrophy ( FSHD). In retrospect, my viewpoint was shortsighted and selfish. My first actual experience with support […]
by Amanda Hill, FSHD Society How do I find clinical trials that are recruiting participants? Our website is one of the best ways to find clinical trials that are recruiting. […]
[…] as well as news about your Society, regional meetings, and upcoming events. Individuals living with FSHD share their thoughts about “coming out” and their responsibilities as advocates and research participants. Highlights […]
