Search results for ‘fshd’

The Future is Now for Natural History Studies

Posted on November 25th, 201911/25/19

[…] first question a drug company asks when exploring the possibility of developing a drug for FSHD is “do you have natural history study?” That’s how important it is. They won’t want […]

Filed under: FSHD Research

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I thought I would never find happiness ever again

Posted on December 8th, 201912/8/19

[…] 2017. I thought I would never find happiness ever again following our daughter’s diagnosis of FSHD. She was six at the time, and we had never heard of the disease […]

Filed under: Living with FSHD

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Finding strength in our pain

Posted on November 21st, 201911/21/19

The suffering that FSHD has caused has also made us stronger people By Meredith Huml Angier, North Carolina   The words “no cure” and “no treatment” were dropped casually into […]

Filed under: Living with FSHD

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FSH Watch Winter 2015 issue is out

Posted on February 27th, 20152/27/15

Highlights include: Summary of our 2014 FSHD Connect Conference held in Boston. Senator Elizabeth Warren addresses the 2014 FSHD Connect Conference. The essential role epigenetics plays in FSHD. Meet the new […]

Filed under: FSHD Society News

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Symptoms

Posted on July 19th, 20197/19/19

What are symptoms of FSHD? Facioscapulohumeral muscular dystrophy (FSHD) is a type of neuromuscular disease (NMD) that affects both men and women. Like other forms of muscular dystrophy, it causes […]

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