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Tuesday, October 20, 2015 Denver 7:00pm-9:00pm. A gathering to socialize, exchange knowledge and advocate for FSHD. This meeting will explore ideas for a fundraising event! More info here. Saturday, October […]
[…] our many donors for providing the funding to advance our scientific and medical understanding of FSHD! β-catenin is central to DUX4-driven network rewiring in facioscapulohumeral muscular dystrophy. Banerji CR, Knopp […]
by June Kinoshita, FSHD Society On June 29, 2020, the FSHD Society convened its landmark Voice of the Patient Forum. Patients and family members testified by livestream and email to […]
On April 21, the FSHD Society is convening its landmark Voice of the Patient Forum, our community’s opportunity to testify to the FDA on the impact FSHD. An important question […]
[…] first question a drug company asks when exploring the possibility of developing a drug for FSHD is “do you have natural history study?” That’s how important it is. They won’t want […]
