2025 Volunteer Leadership Summit
Powered by love and resilience by Beth Johnston, FSHD Society “It’s not just about giving back—it’s about growing, having fun, and being part of something truly impactful.​” – anonymous “Seeing […]
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Powered by love and resilience by Beth Johnston, FSHD Society “It’s not just about giving back—it’s about growing, having fun, and being part of something truly impactful.​” – anonymous “Seeing […]
[…] feel it is a significant honor to be able to contribute to their understanding of FSHD. I have been volunteering to teach second-year neurology students about Facioscapulohumeral Muscular Dystrophy (FSHD) […]
[…] The Johns Hopkins Hospital and the Kennedy Krieger Institute are looking for first-degree relatives of FSHD patients ages 35 and older who do not currently show symptoms. Volunteers will be […]
[…] received throughout the year from fellow FSH Society members that demonstrate how they won’t let FSHD stand in their way. Your support is life-changing to those in the Society – and […]
[…] and plans to develop muscle stem cells that evade the immune system by June Kinoshita, FSHD Society Hot off the press is this news that Vita Therapeutics shared at the […]