Bone Health in FSHD–What do I need to know?

Special talk by Dr. Carla Grosmann from the Kennedy Krieger Institute

Mid-Atlantic Patient Meeting Saturday, May 2, 2015. Noon-3:00 PM
Will be live streamed over the FSH Society’s YouTube channel.

Bone health is a topic that until recently has not been discussed in the context of FSHD, but we are beginning to realize that it is a significant medical concern in both women and men with FSHD. Muscle weakness leads to the loss of the ability to perform weight-bearing exercise and activities, which can increase the risk of osteoporosis (bone thinning). A fall can result in serious bone fractures, a difficult, prolonged period of recovery and rehabilitation, and permanent loss of independence.

At this meeting, Dr. Grosmann will discuss what is known (and not known) about bone health in FSHD patients, discuss risk factors for bone fractures and strategies for maintaining strong bones. She will describe an ongoing research study to increase our knowledge about this important topic: the FSHD Bone Health Study, designed to provide evidence for establishing guidelines for optimal bone health in the FSHD community.

Click here for more information about the event. The meeting will be streamed live, recorded and posted to the FSH Society YouTube channel.