Our look is new. Our purpose is the same. Learn more about our brand evolution.
This infographic from our FY2017 Donor Report illustrates how the FSH Society is involved at every stage of the treatment development process. We invest strategically at key stages along the […]
The movement for universal design–clothing, furniture, medical devices, housewares, and architecture that are accessible, beautiful, and nonstigmatizing–is gaining steam, enough to warrant an exhibition at the Cooper Hewitt Smithsonian Design […]
Download the FY 2017 Donor Report here Amazing! That’s the word that comes to mind when I look back on 2017 and reflect on all that has been accomplished as […]
The FSH Society has awarded a grant for a second year of support for the FSHD Clinical Trials Research Network (CTRN), through the coordinating center based at the University of […]
This year, to celebrate Rare Disease Day, taking place on Wednesday, February 28, we will be hosting a viral photo and video challenge! Share your rare talents and help us […]
