Our look is new. Our purpose is the same. Learn more about our brand evolution.
The nation’s capital will host the world’s premier conferences on facioscapulohumeral muscular dystrophy for all stakeholders. REGISTER HERE. The FSHD Society’s 27th annual International Research Congress (IRC) will be held […]
Join us for the first-ever FSHD Family Day Conference to grace the shores of Lake Michigan. Join family, friends, and fellow travelers living with FSH muscular dystrophy for a wonderful […]
From BusinessWire Dyne Therapeutics, a biotechnology company pioneering targeted therapies for patients with serious muscle diseases, today announced its support for the ReSolve study, an ongoing natural history study designed […]
We are so excited and proud to see Tim Hollenback, host of the FSHD Society talk radio show, featured by Milwaukee’s 10thirtysix news program last night. In this segment, we […]
Here are the slides and the recording from our webinar with Jennifer Bernstein on CBD and medical marijuana. With the spread of legalized medical marijuana and the passage of the […]
