Join us for the first-ever FSHD Family Day Conference to grace the shores of Lake Michigan. Join family, friends, and fellow travelers living with FSH muscular dystrophy for a wonderful half day of learning and connecting.
You’ll meet the region’s leading doctors and specialists, such as Drs. Charulatha Nagar and Don McGovern, to learn about best practices in managing symptoms, genetic testing, family planning, orthotics and braces, etc. You’ll be able to ask top experts about the latest clinical trials and advances in developing treatments. You’ll meet amazing leaders in our community.
Our setting will also be extraordinary. While we know many of you may rather get a root canal than drive into central Chicago, we feel the trip is worth it for the opportunity to tour the Shirley Ryan AbilityLab, recognized as the #1 rehabilitation hospital in the nation.
For event details and to register, visit our Event page. Registration deadline is October 8, 2019.