Our look is new. Our purpose is the same. Learn more about our brand evolution.
This is YOUR university! Join us every 3rd Thursday for our monthly FSHD University webinar, where you’ll hear from different experts in the community to help you on your path with FSHD.
Go to Video Playlist
Learn the best ways to stay active, manage your symptoms, and take care of your body with FSHD! From medical care to physical therapy and exercise, find tips to help you feel your best.
Living with FSHD can be challenging, but your mental health matters too! Discover ways to manage stress, handle life’s ups and downs, and find joy in everyday moments.
The more you know about FSHD research, the more you can take charge of your care and even help shape the future of treatments.
1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Every year, we bring you an update on therapy development for FSHD. What strategies are being […]
19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT The foods you eat impact your disease and can […]
With Jennifer Egert, PhD, and patients and family members 19:00 CET | 18:00 UK | 1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00am PT This […]
