Our look is new. Our purpose is the same. Learn more about our brand evolution.
We have good news and bad. Our Ghostly Gala celebrity host, Max Adler, just announced that he has been cast in the next Clint Eastwood movie. According to the Hollywood […]
Tuesday, October 20, 2015 Denver 7:00pm-9:00pm. A gathering to socialize, exchange knowledge and advocate for FSHD. This meeting will explore ideas for a fundraising event! More info here. Saturday, October […]
Our next FSH Society member meetings for the New England region will be on Sunday, November 8, noon to 3PM. Kirsten Neves will be hosting us in the tasting room […]
We’re excited to announce the arrival of our new “About FSHD” brochure. Updated with the latest information on genetics, symptoms, diagnosis, patient care and more, this is your essential guide […]
The FSH Society is seeking qualified candidates for its Board of Directors. The Society’s mission is to deliver treatments and a cure for FSHD by connecting all the stakeholders and promoting research […]
