Our May Women on Wellness group discussion focused on a topic that is always a big concern, fatigue. This is a group of women who meet monthly on Zoom and… Read More »
Managing Fatigue
Raising our voice to raise our seats!
Medicare will now cover elevating power wheelchair seats by Ranae Beeker, RN Margaret Mead opined: “Never doubt that a small group of thoughtful, committed individuals can change the world. In fact, it’s… Read More »
New frontiers in muscle regeneration for FSHD
Once seen as a long shot, now more companies are looking at strategies to regrow muscles by Jamshid Arjomand, PhD, Chief Science Officer Over the past few years, there has… Read More »
What to do in a crisis
Mental health crises are prevalent in our community. Help is out there A diagnosis of FSHD poses life-long challenges. Individuals live with an undercurrent of anxiety about how their symptoms… Read More »
Your practical guide to clinical trials
by Amanda Hill, FSHD Society How do I find clinical trials that are recruiting participants? Our website is one of the best ways to find clinical trials that are recruiting…. Read More »