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Tips and tricks for managing urinary incontinence Editor’s note: This is a summary of the May Women on Wellness Zoom meeting. The members met to discuss their concerns and solutions […]
The science and psychology of managing chronic pain Chronic pain is one of the more difficult aspects of living with FSHD, and also one of the most challenging to […]
Using Artificial Intelligence to Analyze FSHD Data The FSHD Society announced that it is launching a collaboration involving the FSHD Clinical Trial Research Network (CTRN) and BullFrogAI, an innovator in […]
The recent news that Lululemon founder Chip Wilson is committing $100 million USD to targeted FSHD research over the next six years has been called ‘game-changing’,generating tremendous excitement and hope […]
by Kent Drescher, PhD, Bay Area Chapter Co-Director I’ve had FSHD symptoms for over 50 years. It seems like I’ve spent much of that time waiting. Waiting for treatment. Waiting […]
