Why I exercise
To keep myself fit, ready, and aware of changes in my body by Frank Hanley, Bolivia, North Carolina This is an exciting time for us. The research, clinical trials, and […]
Our look is new. Our purpose is the same. Learn more about our brand evolution.
To keep myself fit, ready, and aware of changes in my body by Frank Hanley, Bolivia, North Carolina This is an exciting time for us. The research, clinical trials, and […]
Carolyn Lloyd’s journey as chief development officer of the FSHD Society reflects her lifelong commitment to service and empathy for those affected by chronic illness. Her role as a caregiver […]
Accelerating clinical trials and access to treatments by Lawrence Korngut, MD, and Blaine Penny, Calgary, Canada This is a very exciting time for the FSHD community, as new therapeutics are […]
Advocacy with humor and hacks Marisa Spain has a knack for making everyday advocacy both fun and impactful. Based in southeastern Michigan, Marisa brings fresh energy to accessibility awareness with […]
MOVE Peds is essential to pave the way by Natalie Katz, MD, and Katy de Valle, research physical therapist More than 50% of people with FSHD develop symptoms as children […]