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The FSHD Society is launching a new chapter for families with early-onset FSHD (also called infantile FSHD). Led by Ally Roets, the chapter will meet virtually to serve people everywhere […]
by Rich Holmes, Sandwich, Massachusetts With growing numbers of people getting vaccinated against COVID-19, many are looking forward to being able to travel again. But traveling with a disability imposes […]
In this FSHD University Webinar from April 15, 2021, Angela Lek, PhD, a research scientist at Yale University School of Medicine, speaks about how her husband’s diagnosis with limb-girdle […]
“I no longer live at the mercy of my mind,” says David Younger, PhD, a psychologist who has lived with the physical decline that comes with his diagnosis of facioscapulohumeral […]
