Pandemics past and a diagnosis long delayed
by Bill Mirza, Palm Harbor, Florida I am an 86 year old white male, living with FSHD for the past 68 years. I wanted to share my life’s FSHD experiences […]
Our look is new. Our purpose is the same. Learn more about our brand evolution.
by Bill Mirza, Palm Harbor, Florida I am an 86 year old white male, living with FSHD for the past 68 years. I wanted to share my life’s FSHD experiences […]
In his keynote lecture from this year’s International Research Congress on FSHD, held virtually on June 25-26, George Padberg, MD, regarded as the father of modern FSHD research, shared observations […]
In this recorded webinar, Julie Hershberg, PT, DPT, NCS, presents evidence-based benefits or physical therapy and exercise for patients with facioscapulohumeral muscular dystrophy (FSHD). Dr. Hershberg is a neurologic […]
Nestled into a basement in an outpatient building at UCLA Health’s Westwood hospitals is UCLA Neurology, home to ground-breaking FSHD Research. UCLA Health already ranks as the #1 hospital […]
One of the classic symptoms of FSHD is “scapular winging.” The muscles around the shoulder blade (scapula) weaken and allow the bone to jut out like an angel’s wing. This […]