Our look is new. Our purpose is the same. Learn more about our brand evolution.
Since its launch last year, our national chapter program has grown by leaps and bounds. We now have 25 chapters in 18 states! Check out the map above and visit […]
We’re excited to welcome Alan Brown of Holicong, Pennsylvania, as our guest on FSH Society Radio on July 31 at 9PM EST. Alan is the director of business development at […]
By Tiffany Zimmerman, Deltona, Florida I don’t think any of my work as an artist really focuses on my having FSHD. I do feel, however, that my art and creativity […]
A few years ago, James Partridge, a long-time FSHD Society member, decided to re-boot his career and pursue his passion for the blues. His home city of Ann Arbor, Michigan, […]
UPDATED 8/9/19 Fulcrum Therapeutics has posted on clinicaltrials.gov information about its upcoming clinical trial of losmapimod. The trial is NOT YET RECRUITING volunteers. People can monitor the clinicaltrials.gov site regularly […]
