Rare Disease Day Rare Talent Challenge
This year, to celebrate Rare Disease Day, taking place on Wednesday, February 28, we will be hosting a viral photo and video challenge! Share your rare talents and help us […]
Our look is new. Our purpose is the same. Learn more about our brand evolution.
This year, to celebrate Rare Disease Day, taking place on Wednesday, February 28, we will be hosting a viral photo and video challenge! Share your rare talents and help us […]
A drug that helps muscles grow and regenerate. Molecules that occur naturally in our cells to repress DUX4, the “toxic gene” thought to cause FSHD. A deeper dive into why […]
Join us on Wednesday, February 28, 2018, at 9:00 pm EST. Listen live on BlogTalkRadio, or listen and ask questions on the air by calling (949) 270-5953. On this episode of FSH Society […]
Many people with FSHD do not see a neuromuscular doctor regularly. Told that there is no treatment, they wonder, “What’s the point?” In this video, Jeffrey Statland MD explains why […]
Many of us have never heard of this field of medicine, but physiatrists are a very important resource for FSHD patients. In this video, Dr. Susan Keeshin of Shirley Ryan […]