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A positive and enthusiastic event for the FSH Society was held last night! A big thank you to Russell Caratenuto, his coach and team for spreading more awareness about the […]
By Russell Caratenuto III This May 6, I’m organizing an FSHD fundraiser with the East Brunswick High School boys volleyball team in order to raise awareness for FSHD. As I […]
Special talk by Dr. Carla Grosmann from the Kennedy Krieger Institute Mid-Atlantic Patient Meeting Saturday, May 2, 2015. Noon-3:00 PM Will be live streamed over the FSH Society’s YouTube channel. Bone […]
Re-posted with permission from Spencer Wyckoff Before the Race Three ordinary people set out toward the Georgia International Horse Park on Saturday March 7, 2015 around 7:00am. Our bellies were full of […]
Are you eager to meet other patients and learn about the latest research? Several meetings are being planned for next month. Find out if there’s one near you: April 12, 2015 […]
