Last November, the FSH Society invited its members to participate in a survey designed to gauge what members understand about patient registries and for researchers to gain insight into what kind of… Read More »
On patient registries: findings from our suvey
Team FSHD Cycling: Race Across America
Team FSHD Cycling, formed by George Pollock Jr., will participate in the Open Division as an 8 person team in this year’s Race Across America, one of the most respected and longest running ultra-endurance… Read More »
Ask the Physical Therapist: Running a Marathon and Customized Workouts
The following is a transcript of a question-and-answer session, conducted over the FSH Society’s Facebook page, with Julie Hershberg, PT, DPT, NCS. Hershberg is a physical therapist who is a… Read More »
Ask the Physical Therapist: How much is too much exercise and “pinging” in an arm
The following is a partial transcript of a question-and-answer session, conducted over the FSH Society’s Facebook page, with Julie Hershberg, PT, DPT, NCS. Hershberg is a physical therapist who is… Read More »
New Source for FSH Muscular Dystrophy Family Cell Lines
Cell Lines to be made available through the NIGMS Human Genetic Cell Repository, sponsored by the National Institute of General Medical Sciences at Coriell Institute for Medical Research (From PRWeb)… Read More »