Our look is new. Our purpose is the same. Learn more about our brand evolution.
Ellen Feldman, filmmaker, created this documentary about a woman she met who has FSH muscular dystrophy. “Katy Kat in the Hat is a story about a woman who defies all […]
We just received news that the FSH Society has earned its ninth consecutive 4-star Charity Navigator rating! We’re now in the top 1% of all U.S. charities! According to Michael […]
Last month, FSH Society Ambassadors Carden and Spencer Wyckoff hiked through the Georgia portion of the Appalachian Trail to raise awareness and funds to cure FSHD. You can now watch […]
On November 11, the FSH Society honored four distinguished researchers and community members at its inaugural CureFSHD National Gala in Boston, Mass. The event, hosted by WBUR’s Morning Edition Host […]
The evening of the CureFSHD Gala on November 11, 2016, in Boston, Massachusetts, was one of those magical moments when we were overcome with gratitude for the generosity, courage, and […]
