Our look is new. Our purpose is the same. Learn more about our brand evolution.
By Russell Caratenuto III This May 6, I’m organizing an FSHD fundraiser with the East Brunswick High School boys volleyball team in order to raise awareness for FSHD. As I […]
Special talk by Dr. Carla Grosmann from the Kennedy Krieger Institute Mid-Atlantic Patient Meeting Saturday, May 2, 2015. Noon-3:00 PM Will be live streamed over the FSH Society’s YouTube channel. Bone […]
Yes, we’re talking about FSHD On those rare occasions (such as the FSHD Connect meeting) when large numbers of individuals with FSHD gather in one place, one can’t help but […]
Congratulations to FSH Society honorary board member Kelli O’Hara for her much-anticipated debut in the role of Anna in the current Broadway revival of “The King and I.” The production […]
We are deeply saddened to report that Bob Smith, a member of the FSH Society’s Board of Directors, passed away last night following a brief illness. Bob was an attorney practicing […]
