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News

Home / Blog

Our latest publication from FSH Society’s Living with FSHD Series is now available!

March 23, 2012 Pinned Post Leave a Comment

Our latest publication from FSH Society’s Living with FSHD  Series is now available!  For details HERE. To read the “FSHD:  A Guide for Schools” on-line  PDF

Filed Under: Living with FSHD

FSH Watch Winter 2012

February 2, 2021 Pinned Post Leave a Comment

Highlights include: FSH Society Annual Donor Report FSH Society 2012 International Patient/Researcher Network Meeting Tentative Program Grant Awards for August 2011 New book Still Walking by Bill Moss. “These memoirs are the… Read More »

Filed Under: FSHD Society News

New paper in Developmental Cell

December 28, 2011 Pinned Post Leave a Comment

New paper in Developmental Cell identifies a set of genes regulated by DUX4 and suggests possible mechanisms for  causing muscle damage that might be targeted for developing therapies “DUX4 Activates … Read More »

Filed Under: FSHD Research

Best practice guidelines on genetic diagnostics of FSHD are now available

February 2, 2021 Pinned Post Leave a Comment

Best practice guidelines on genetic diagnostics of  FSHD are now available and published in the journal Neuromuscular Disorders!  FSH Society sponsors workshop held June 9, 2010,  in Leiden, The Netherlands.

Filed Under: FSHD Research, Health and Medicine

FSH Watch Fall 2011

February 2, 2021 Pinned Post Leave a Comment

Highlights include: Scapulothoratic fusion in FSHD: a surgical wiring technique has been utilized for fixation of the scapula to the adjacent ribs New books for your consideration Pregnancy and birth… Read More »

Filed Under: FSHD Society News

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