Celebrating Women in FSHD: International Women’s Day 2025 In honor of International Women’s Day, join us in celebrating many of the amazing women advancing research and creating community for folks… Read More »
International Women’s Day 2025
Rebounding exercises
by June Kinoshita, FSHD Society At a recent Feeling Fit Zoom gathering, Cheryl Clulow, who had logged in from her home in Cape Town, South Africa, mentioned that she has… Read More »
Press Release: FSHD Society Strengthens Leadership with Experts in Healthcare, Biotech, and Market Access
FSHD Society Strengthens Leadership with Experts in Healthcare, Biotech, and Market Access FOR IMMEDIATE RELEASE RANDOLPH, Mass., Feb. 26, 2025 — The FSHD Society, a leading nonprofit dedicated to advancing… Read More »
2025 Volunteer Leadership Summit
Powered by love and resilience by Beth Johnston, FSHD Society “It’s not just about giving back—it’s about growing, having fun, and being part of something truly impactful.” – anonymous “Seeing… Read More »
You’re invited! Mobility impact study
Nils Hakansson (he also goes by Alex) is a professor in the College of Engineering at Wichita State University. He has FSHD and is working on projects to help improve… Read More »