In honor of World FSHD Day this month, we are spotlighting our community member, Bob Humphreys, who shares with us how BetterLife has helped him on his journey. Note: Testimonials […]
Observed on June 20, World FSHD Day is a global movement to raise awareness of Facioscapulohumeral Muscular Dystrophy (FSHD), one of the most common forms of muscular dystrophy. On this […]
By Erin Folk In the spring of 2024, we began searching for answers about my daughter, Kinsley. At just 13 years old, she began losing muscle on the right side […]
By Taylor Quigg I was diagnosed with Facioscapulohumeral Muscular Dystrophy (FSHD) in August 2014 while I was eight weeks pregnant with my second daughter. At the time, my oldest daughter […]
By Kathy Chase Read more of Kathy’s writing on her Substack. People think they understand FSHD when they hear the words “muscular dystrophy.” I thought I did too. I imagined […]
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