The 2025 Walk & Roll season has ended, but we’ve included all our weekly updates (photos, videos, news coverage, stats, and more) below. A huge and heartfelt thank you all […]
By Ranae Beeker My name is Ranae Beeker, and I am responsible for facilitating, running, and moderating the Women on Wellness (WOW) support group. Over the past five years, our […]
by Beth Johnston Earlier this month, we added the 4th Canadian Chapter to the roster of our growing FSHD Communities! The Quebec Chapter is led by father/son duo Sylvain and […]
by Kim Shanley We’re only halfway through 2025, and it’s already been an incredible year for our DIY and endurance community at the FSHD Society. Kicking things off, Michael Ahlers […]
by Sam Feldman If you have FSHD (or are close with someone who does), you probably know that mix of frustration, fear, and “will anything ever actually help?” I’ve been […]
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