There are already many effective interventions by Nicol Voermans, MD PhD, Radboud University Medical Center We hear that currently there is “no cure for FSHD,” but this does not mean… Read More »
Treatments for FSHD: A broader view
Kitchen Confidential
Tips and tricks from our Women on Wellness Zoom group’s October meeting on Adaptive Cooking and Adaptive Eating. Notes by Helen Cave and Ranae Beeker, RN. One member has reorganized… Read More »
The FACT Alliance
Progress through collaboration by Jamshid Arjomand, PhD, Chief Science Officer As a fan of home improvement shows, I’m fascinated by the evolution of going from an idealized dream home or… Read More »
2023 International Research Congress summary
The journal Neuromuscular Disease has published a summary of the FSHD Society’s 2023 scientific conference held in Milan, Italy, this past June. The article was co-authored by Jamshid Arjomand, PhD,… Read More »
Step by step. Inch by inch
I have never met most of you, but you are all my village by Brian Jude Loiacono When I reflect back on my life playing all kinds of sports in… Read More »