A new short film directed by Academy Award-winning New Zealand filmmaker Taika Waititi features Dr. Tristram Ingham, a physician and disability advocate living with FSHD. The film was made in… Read More »
FSHD advocate in film about Apple Personal Voice
The children of FSHD – they exist, too
One community – united effort – cure for all by Ally Roets, Tucson, Arizona A few years ago, as we started to hear about clinical trials for promising new drugs… Read More »
Shaking Qigong to relax your body
Here’s something to help you relax after the stress of the holidays. Our December 2023 meeting of the Feeling Fit group featured Qigong instruction by member Trish Kean. You… Read More »
Engineering new muscles
Using nature’s scaffolding to coax cells to develop into muscle by Fred Thys, Weymouth, Massachusetts Neil Camarta, who has FSHD and founded the FSHD Canada Foundation, discovered that there is… Read More »
Clinical care vs. clinical research
Know the difference by Amanda Hill, FSHD Society In your journey with FSHD, you’ve probably heard about the importance of seeing your doctor regularly. You also most likely have heard… Read More »